6 Months

My six month appointment at the CI center was a good one. I drove down to Chapel Hill the day before and spent the evening with my cousin and his wife. I hadn’t seen them since before my CI surgery, so it was nice to catch up.

The audiologists had moved to a satellite location away from UNC hospital. I found that ok, only had to make one U-Turn. They were ready to see me as I walked in the door.

I had emailed ahead of my appointment saying that I’d like to be evaluated for a second implant but I hadn’t really heard back from them confirming that. We talked about it at my previous (3 or 4 month) visit but my appointment with the surgeon had gotten lost in all the times that they had changed my appointment time and I had changed and rescheduled due to travel conflicts.

So as I sat down in the sound booth they said I was scheduled with them for the evaluation now, then with the surgeon, and then I could come back and see them again to do a new mapping afterward. As it turned out, we got through everything rather quickly and had time to do new maps before I left them. The ENT office is chronically behind schedule anyway, so I wasn’t worried about showing up 10 minutes late.

audiogram-11-09The interesting part of this visit was that we tested everything. Residual hearing in both ears, hearing aid in just the left ear, implant in the right ear. I’m really starting to learn the HNT test sentences which was making it hard to get an accurate score with my unimplanted ear. I was getting all or nothing on those sentences which obviously shows I wasn’t really hearing, just remembering.

Like I said in a previous post, I knew I still had some residual hearing in my implanted (right) ear. I notice it when I listen to music in the car – the bass comes through even without the implant on. Still, they hadn’t tested that ear since 2 weeks after surgery and I still had some fluid in that ear.

They checked out my hearing aid and turned it up just a little before doing the CI evaluation to make sure that I had a properly fit aid as is required.

Then came sentences, sentences in noise and CNC words.  I actually enjoyed the CNC test with my CI.  I see that one improving quite a bit more from the 64% it’s at now.

audi-11-09

So I saw the surgeon and he didn’t see any reason not to go bilateral if I wanted.  I’ve had 2+ months to think seriously about it and it’s really a very easy choice.  I hear so much more with the implant than with just a hearing aid.  My brain is interpreting most sounds as normal, and even music sounds good.

We’re using the same MedEl Medium-electrode and aiming to preserve hearing again.  He warned me that I have more to lose in that ear, but functionally, it’s about the same.  The date is December 23rd which might sound crazy to some people, but it means I won’t have to take much time off of work.  My company shuts down for the rest of the year at Christmas and I’m required to save vacation days or go without pay.  The last two years we have traveled, but this year it will be nice to just relax.

Mainstreaming vs Deaf School…

I just read this post by Mark Drolsbaugh at Deaf Culture Online: http://www.deaf-culture-online.com/mainstreaming-vs-deaf.html. It’s about the different levels of social interaction that his son experiences at various summer camps. I liked the article because it really emphasizes how essential peer interaction is. It also shows that even if you aren’t 100% fluent in ASL, it can often times be easier for someone who has a hearing loss to be included in an all-deaf environment. I’ll never be able to completely relax when depending on my hearing to socialize, but with sign language I’m on equal footing, if still a beginner. I can learn ASL, I can’t really learn to hear better.

I’ve experienced this myself to some extent. Mostly it is the awareness level of people. There were hardly any other deaf students in my engineering classes at RIT, but because 10% of the undergraduates at RIT came from NTID and were deaf, I never had to explain to anyone what they could do to help me. They had all been caught in an elevator with 15 signing deaf people. They had all had to communicate with pen and paper or by speaking clearly, enunciating and repeating if necessary. And no one ever assumed I was stuck up because they thought I was ignoring them. That awareness extended into the Rochester community as well. I haven’t experienced it anywhere else since then.

That is how mainstreaming is supposed to work – creating equal access and awareness for all. Unfortunately it takes a critical mass of population to accomplish this. Even in Washington, DC, home of Gallaudet University, I didn’t encounter the awareness level that I did in Rochester.

Anyway… The Deaf Culture Online site is a very good resource for anecdotes and insight into what Deaf people experience.

The Future of Work

Getting sick of these posts yet? :) I keep posting them because this is something I feel strongly about. I enjoy my job but I don’t enjoy being tied to a desk all day. I want a job that encourages me to work efficiently and lets me decide the best way, place and time to do that. I’d like to be self-employed, but haven’t come up with the right way to do that yet.

Last night I was at dinner with my boss and another colleague. My boss said he doesn’t see himself ever retiring ever. He enjoys working and wouldn’t know what he would do instead. I offered him my job. I’d love to retire. They picked on me for that, saying “You’ve only been working 8 years, eight? What would you DO?” Oh, I could come up with a lot of things I’d do. It wouldn’t involve being in an office on a sunny day. It makes me sad that I spend well over 90% of my life indoors. Maybe I should start sleeping in a hammock… that’d be the easier fix.

So the following presentation is about the future of work – I’m glad that I’ll be around to see it. I don’t have a problem spending a third of my life earning a living, but why does it have to be so strict about the location and hours?

Residual hearing post Medel CI

I just had my 6 month mapping and will post about that soon. In the mean-time for those who are curious, here is a comparison of my implanted ear’s audiograms before and after the CI (residual hearing). Hearing With the CI is 15-25 across the board, 250 to 6000 (they don’t test 125 Hz but I can hear that low too).

Saxophone Ensemble Video

http://www.youtube.com/saxcase

Playing with Google Wave…

By now you’ve probably heard of Google Wave. It’s a new “collaboration tool” from Google designed to replace email some day… or something like that. Right now, to me, it just feels like a cross between threaded instant messaging, a multi-user forum, email, twitter, a chat room…

I’ve used instant messaging (IM) for years and years now, since 1996 when ICQ was your internet pager and AOL was just opening AIM up to people outside of the AOL network. Then came Yahoo IM. Now I use IM inside of Gmail with Google-Talk and AIM buddies only. My phone uses BeeJive to connect to AIM, Yahoo and Google-Talk. I use Twitter to chat with people too, many of them I don’t know very well, and I think an advantage of Twitter is you’re not expected to keep a conversation going beyond a sentence or two to each other. Email has that same feel, no need to reply if you don’t have more to say. No need to say goodbye when you’re leaving your computer. I think Wave captures that. It’s fast when you’re both present, but it’s saved for you to get later if you’re away.

Anyway. I’m all for a unified text-based collaboration platform, so if Google Wave ends up being that, that will be excellent. If it becomes mostly video then hopefully it’s easy to write along with the video to supplement those of us who can’t hear video perfectly.

It’s in an invite-only “Preview” right now. I may have a few invites, so let me know if you are interested. I expect it to spread to more people pretty fast in the next few weeks and months.

If you’re already on wave, you can use the box below to say hi :) If you aren’t, then you’ll probably see part of Google’s page about it.

Software-as-a-Service (SaaS) and Small Businesses

There’s been a trend developing over the last few years to offer software applications that you can use from just a web browser. I’m typing in one right now, Wordpress. GMail is another. They have gotten very sophisticated in recent years. Quite a few benefits are provided too. The software is constantly upgraded without your need to do anything, your data is backed up (hopefully! this might be good to verify in the terms of service now and then), you can access your program and data from any computer and there’s no need to save the information on the computer you’re on to see it.

How does this relate to a business? There are many business-related software programs that now charge a monthly fee and provide their software. From an entrepreneurial view point I totally respect that business model. Subscriptions are the way to go. Especially if they auto-renew. They’re stable, and even if people aren’t using your service they have to remember or make an effort to stop paying you.

From a user standpoint, I don’t like subscriptions. I’d rather pay once and be done with it. Same reasons, just from the opposing view. :)

From a business point of view though, there is software that you generally must pay for. A Bookkeeping program, for example. Quickbooks costs $200 and gets upgraded probably every year. As a Mac user I haven’t heard many good things about the program so I was looking for alternatives.

Most of the Software-as-a-Service websites cost at least $20 a month. Some are as low as $8 a month. I would love to be able to use Freshbooks for invoicing, but their free version isn’t usable (limited to 3 customers), and their cheapest pay version is $19/month. I can’t afford that much just to send out invoices.

Lately I am using the free versions of Zoho.com’s CRM and Invoice programs. The CRM program lets me capture customer information from a web form and import it into the Invoice program. The Invoice program lets me automatically create the PDF version of the invoice, emailing it along with a link to pay through my Authorize.net Payment gateway (which costs too much, I may drop it and just use PayPal). I’m close to the limit on the free Zoho Invoice account (5 invoices per 30 days) and may try to find something I can host myself for free (or switch back to just PayPal’s built in Invoicing).

The best solution I have found from all this is the bookkeeping program I’m using now.  It’s called Outright.com and is similar to Mint.com in that it’s set up to import your expenses from other accounts.  The difference is it is business focused, so it has reports and tax information built in.  The best part?  It’s actually free.  (I think their business model is to partner with other SaaS solutions (which aren’t free) and make money that way.)

In order to get more customers, Outright is currently offering me $5 for each person who signs up and uses the service.  I’m only a fan of affiliate programs like this for products I actually do use and would right about anyway.  And since it’s free there really isn’t a reason not to try it out.

I wrote about my business before here: Slides In A Flash

I’d be curious if anyone has any great apps they’d like to share or stories about businesses, record keeping, etc.

Video

This video made me smile. It’s good to see people in the Deaf community talking about their CI experience. Warning: I just learned 3 or 4 HINT test sentences from it… but now that I have a CI I can hear them anyway.

Gallaudet Professors Josh and Sam Swiller received their cochlear implants…

5 Months with a Cochlear Implant, Music and Lectures

First things first.  Music with my cochlear implant is way way beyond my expectations. But I had pretty low expectations.

Seriously, music sounds great now (5 months from activation).  The CI adds a whole new layer of sounds that I couldn’t hear before.  It helps bring out the lyrics.  It adds the higher frequency percussion, cymbals, drums besides bass, harmonicas, all kinds of things.  Yes, more cow-bell!

I’ve been learning to “play” the drums in The Beatles: Rock Band.  My second attempt at a “rhythm game”, the first was DDR which I had trouble with because beats weren’t always apparent to me.  I also tried the Wii Music game but the only instrument I could hear well was the tuba!  Rock Band, at least with Beatles music, is very fun.  I’ve played through every song on drums on easy and even tried to sing a bit.  The Wii says I sing pretty well, but nobody’s ever told me that in person!  I guess hitting pitches doesn’t equate having a pleasant quality to your voice.  I’ll stick to sax.

When I play my saxophone, wearing both the CI and a hearing aid in the other ear (call this bimodal) it can sound like I’m hearing double.  The CI has a different quality than the hearing aid, even though they now sound like the same note and both sound good.  With more complex music I notice that the CI picks up some things and the hearing aid picks up others (and with a subwoofer my residual hearing picks up the bass).  All together they make music sound very good, but separately it doesn’t sound right to me.  The hearing aid alone sounds very quiet still and the CI alone is still a bit thin sounding and sometimes squeaky.  I will say that vocals have improved from having a chipmunk quality to having a Beatles quality (squeaky).  Not sure if listening to Beatles music will improve that…….

I’m very glad that the time period when I couldn’t hear half steps when I was playing my saxophone is over.  For the non-musical people, a half step is the space between a white key and a black key on a piano. If you play something a half step off from what it should be it sounds very wrong.  The guy sitting next to you will probably hit you if you mess up too many times because with normal hearing it only takes once to get it in your head that all the upcoming Bs are flat (for example).

Hearing the percussion also helps me stay on track in band.  It helps me hear a beat when out dancing. Salsa is still a weird beat, but when all you can hear is the bass you can’t figure out how they get 5,6,7,8 out of that.

Speaking of band, I’m hearing the director much easier lately.  I used to have to focus 100% and guess 50% to hear him.  Now I’m just understanding.  This is in a large room with excellent acoustics, but probably from 15 feet away.

I also took a class (review for the PE exam) and I think I was understanding quite a bit more than before.  It wasn’t a great room, and it wasn’t easy to just listen.  Several of the teachers (we had 4 or 5 teachers over 6 days) had accents, beards, or just spoke fairly quietly.  They also wore a mic, so the amplification would normally have messed with my understanding.  Louder means an echo so doesn’t help the signal to noise ratio at all.  My biggest conclusion from class was that I’d definitely want bilateral CIs if I was a student.  Socializing during breaks was easier than normal, but still not that easy if a conversation started up between me and the person I was trying to talk to.

How the CI brands leap-frog each other…

It’s nice that there are three brands of cochlear implants. The competition keeps everyone moving forward. Cochlear just had a new implant and processor approved, the Cochlear 5.  Here’s an example comparison posted to one of the mailing lists I’m on that shows how one brand is catching up with another.

With the advent of the Nucleus 5 from Cochlear, some have asked how slim and light the new processor really is and how does it compare with the other brands.

To that end, a tally, from the manufacturer’s specifications, of the latest models of the 3 US FDA approved brands.

With all shaped a bit differently, I only compared the maximum thickness, seemingly the most important consideration, along with weight.

All compared with the lightest rechargeable battery option.

Advanced Bionics Harmony: 13mm thick 12.9 gm ( PowerCell Slim)

Cochlear Nucleus 5 (CP110): 9mm thick 10.9 gm ( Compact Rechargeable)

MED-EL Opus 2: 8.7mm thick 10.1 gm ( Standard DaCapo Rechargeable)

Welcome

Photo of Sara Looking out a Window
I'm a 30 year old girl originally from upstate NY. I work full time as an engineer and try to pack as many hobbies into the other 14 hours of my day as I can. I lost my hearing at age 14 and have been using hearing aids since then. In April 2009 I received my first cochlear implant. That went really well so in December 2009 I got the second. The CIs are what prompted me to start writing publicly - but I try to cover other things as well.

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